So Alexander's birthday video is blocked because of the song I used "Beautiful Boy." Due to copyright, I can't use it apparently. So I'll try again with this song. This is the original song I put with the video to share at his church baby dedication. The song on this video is "Blessings." Although this video is about Alexander, both of my children are incredible blessings.
I've shared on this blog that finding out about Alexander's hearing loss was bitter sweet. Yes, we had "been through this" before and yes, we knew what to do. There was also part of me that was glad Lily would have someone to relate to...someone who would understand what it's like to have trouble hearing your friends in the cafeteria or a noisy restaurant. Someone who would know what it's like not to be able to hear well in the swimming pool. Someone who knows what it's like to rely every single day on batteries and hearing devices. Since Josh and I are both hearing, we would never be able to relate to her in that way.
But there was also a big part of me that was sad and scared and a little angry that we had to go down this road again. And because I had been through this before and I DID know what to do, I knew that I would all too soon be faced with ABRs (infant hearing tests for which the baby has to be asleep and STAY asleep), hearing aids, ear molds (ugh!), more ABRs, more and more and more EAR MOLDS, sound booth testing, and the constant worry of whether or not he is amplified enough and correctly. By the way, the last thing still hasn't gone away. Since Alexander's hearing loss is moderate with a good chance of progression, I'm constantly wondering if he is getting enough of a boost from his hearing aids to be hearing all frequencies (especially the high frequencies). I also worry about how many words he understands and how many he uses in spontaneous speech. Is he on track for his age? Are we doing enough auditory verbal therapy? But with all the worrying, crying, praying and questioning, my babies are STILL, and will always be, THE VERY BEST things that have ever happened to me. Sometimes God's blessings look different than we expect.
Beautiful song and video, Happy Birthday Alexander! What a beautiful bond you have to share with your sister!
ReplyDeleteBeautiful video and beautiful boy! I totally understand where you are coming from, we are a connexin 26 family too. We have been looong debating on having another child but have finally come to the same conclusion as you, no matter what he/she will always be a blessing. Now we just have to decide on "when?" ;) Thanks for sharing your thoughts and feelings, its comforting to know someone understands.
ReplyDeleteThis video is so sweet! Sophie and I sat and watched it together and she loved seeing the pics of the "baby boyeeee!" And yes, you have two WONDERFUL blessings. I think they will be lucky to have each other as they grow older and will always have a special bond. :)
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