Alexander and Lily

Alexander and Lily

Wednesday, October 27, 2010

Alexander's Hearing Aids

Our ENT called and confirmed Alexander's diagnosis. His hearing loss is also caused by Connexin 26. It is fortunate that he has some hearing, but as I wrote before, we'll have to keep a close eye on him as the hearing loss can be progressive.

Yesterday Alexander got his hearing aids. It was really cool to watch him react to sounds in a way he never has before. He is turning to sounds a lot more now. When we were in a group of people, the noise was too much and he started pouting and then crying. He is going to have to go through an adjustment period. This is all very new to us because Lily's hearing aids did nothing for her.

With the good comes the bad. We are again immersed in a world of squealing from the hearing aid feedback. We are also struggling to keep the hearing aids on Alexander. He isn't pulling them out yet, they just keep falling out. I'm guessing the ear molds are already too small even though he just got them yesterday. The molds were made almost 3 weeks ago.
Here is Lily pointing to her baby brother's new ears.
Alexander's hearing journey has begun!


  1. that's awesome!
    these looks like Phonaks that he's wearing and what a cool color!

  2. Thats great!!!!! They def look like phonaks, my daughter has pink phonaks with pink moulds!
    So glad to hear he is already doing wonderfully with them in :)
    I wish it was easier trying to keep them in we have to use the pilot cap otherwise they would be a hearty meal lol

  3. I can imagine that it feels like a different world, like the hearing aids actually work. The hearing journey begins, and I can't wait to follow along!